Who we are
The project is undertaken by an interdisciplinary team of international experts in clinical genetics, the sociology of genetics and medicine, ethics and law in clinical genetics practice. The team has expertise in paediatric, cancer and cardiac genetics, knowledge of how these specialties are integrating genomics into practice as well as access to relevant clinical populations for data collection.
Principal Investigator
Susan Kelly, Associate Professor in Medical Sociology, Sociology, Philosophy and Anthropology University of Exeter
Co-Investigators
Angus Clarke, Clinical Professor, Institute of Cancer & Genetics, Cardiff University
Anneke Lucassen, Professor of Clinical Genetics, Honorary Consultant in Clinical Genetics, Wessex Clinical Genetics Service, Co-ordinator: Ethics and Law teaching Southampton Faculty of Medicine, University of Southampton
Peter Turnpenny, Consultant Clinical Geneticist Royal Devon & Exeter (RD&E) Hospital, Honorary Associate Professor, University of Exeter Medical School
Legal consultant
Naomi Hawkins, Senior Lecturer, Law School, University of Exeter; Research Associate at HeLEX - Centre for Health Law and Emerging Technologies, University of Oxford
Research Fellows
Daniele Carrieri, University of Exeter
Sandi Dheensa, University of Southampton
Shane Doheny, Cardiff University
Advisory Board
Andrew Green, Professor of Medical Genetics, National Centre for Medical Genetics, Crumlin Hospital, Dublin
Andrew Hattersley, Professor of Molecular Medicine and Consultant Physician in Diabetes, University of Exeter Medical School
Alastair Kent, Genetic Alliance UK
Frances Flinter, Professor of Clinical Genetics, Guy's and St Thomas' NHS Foundation Trust
Gillian Crawford, Registered Genetic Counsellor, University of Southampton
Imran Rafi, Chair of Royal College of General Practitioners Clinical Innovation and Research
Mila Petrova, Department of Public Health and Primary Care, University of Cambridge