Who we are

The project is undertaken by an interdisciplinary team of international experts in clinical genetics, the sociology of genetics and medicine, ethics and law in clinical genetics practice. The team has expertise in paediatric, cancer and cardiac genetics, knowledge of how these specialties are integrating genomics into practice as well as access to relevant clinical populations for data collection. 

Principal Investigator

Susan Kelly, Associate Professor in Medical Sociology, Sociology, Philosophy and Anthropology University of Exeter


Angus Clarke, Clinical Professor, Institute of Cancer & Genetics, Cardiff  University

Anneke LucassenProfessor of Clinical Genetics, Honorary Consultant in Clinical Genetics, Wessex Clinical Genetics Service, Co-ordinator: Ethics and Law teaching Southampton Faculty of Medicine, University of Southampton

Peter Turnpenny, Consultant Clinical Geneticist Royal Devon & Exeter (RD&E) Hospital, Honorary Associate Professor, University of Exeter Medical School

Legal consultant

Naomi Hawkins, Senior Lecturer, Law School, University of Exeter; Research Associate at HeLEX - Centre for Health Law and Emerging Technologies, University of Oxford

Research Fellows

Daniele Carrieri, University of Exeter

Sandi Dheensa, University of Southampton 

Shane Doheny, Cardiff University

Advisory Board

Andrew Green, Professor of Medical Genetics, National Centre for Medical Genetics, Crumlin Hospital, Dublin

Andrew Hattersley, Professor of Molecular Medicine and Consultant Physician in Diabetes, University of Exeter Medical School

Alastair Kent, Genetic Alliance UK

Frances Flinter, Professor of Clinical Genetics, Guy's and St Thomas' NHS Foundation Trust

Gillian Crawford, Registered Genetic Counsellor, University of Southampton

Imran Rafi, Chair of Royal College of General Practitioners Clinical Innovation and Research

Mila Petrova, Department of Public Health and Primary Care, University of Cambridge